We had the esophagus scope this morning that showed there were no problems with the esophagus itself. There is a problem in that the closer at the bottom of the esophagus, which leads to the stomach, does not close all the way...which makes reflux more common. They were please with the scope, but seemed a little concerned about the sphincter not closing all the way. We have the pH probe in right now and I can hear Joe from the other room gently saying "Ella, we don't play with that string" so I'm guessing it's going as well as can be expected with a curious 10 month old. She did beautifully in the procedure and every time they would say "children are usually fussy after this" or "they don't usually like it when we do this" she would start to smile and laugh...I can see the face of God in this child daily. Joe and I are convinced that she's already sat in the lap of our Lord while she was in the NICU and looked into His face...I guess that explains how she is always in a good mood.
We go in tomorrow to take out the probe and will probably get a report by the end of the week. We have also talked about seeing a pulmonologist, a lung doctor, to discuss the fluids that she does get in her lungs. We are going to exhaust every option and specialist before we decide to do the surgery. If you ask why we didn't think about this before, it's because we felt that the feeding tube was an immediate need, looking back we are thankful of the slower and more deliberate process...it's funny how I was so frustrated on Friday and now I'm glad that we didn't rush into anything.
Thank you for your continued prayers.