Saturday, May 13, 2006
Ella Update as of Saturday 10:30 a.m.....
Ella seems to be fighting even harder. She has been without a seizure since 6:00 p.m. yesterday, praise GOD. The doctors have lowered one of her antibiotics as she has received plenty of that one in her little body. A normal babies heart rate is 90-100 bpm and Ella's has gone from 170 bpm to 120 bpm, again praise GOD. The doctors have told Joe and Andrea she is still VERY critical and although we have some good news and much more hope we are not out of the woods just yet. She is still critical and critical with a life threatening disease. We all know it is going to take a lot more time to get her well enough to go home. She is a little fighter and this just shows the power of prayer is working. Andrea, Joe, and Ella ask that you please not give up on praying just yet as she needs this strong prayer in her corner. God has his grip around her and we need to continue to ask him for help and praise him for what he is already doing. We will be taking an hour of silence and prayer time this evening at 6:00 p.m., to thank God for what he has already blessed us with and to let him know we give him all of the glory. Please feel free at any point in that hour to join in. We will be doing this from across the country and across the world from our homes, work , and even stopping in our busy lives wherever we may be.
Ella Update as of Saturday 10:30 a.m.....
Ella seems to be fighting even harder. She has been without a seizure since 6:00 p.m. yesterday, praise GOD. The doctors have lowered one of her antibiotics as she has received plenty of that one in her little body. A normal babies heart rate is 90-100 bpm and Ella's has gone from 170 bpm to 120 bpm, again praise GOD. The doctors have told Joe and Andrea she is still VERY critical and although we have some good news and much more hope we are not out of the woods just yet. She is still critical and critical with a life threatening disease. We all know it is going to take a lot more time to get her well enough to go home. She is a little fighter and this just shows the power of prayer is working. Andrea, Joe, and Ella ask that you please not give up on praying just yet as she needs this strong prayer in her corner. God has his grip around her and we need to continue to ask him for help and praise him for what he is already doing. We will be taking an hour of silence and prayer time this evening at 6:00 p.m., to thank God for what he has already blessed us with and to let him know we give him all of the glory. Please feel free at any point in that hour to join in. We will be doing this from across the country and across the world from our homes, work , and even stopping in our busy lives wherever we may be.
Ella Update as of Saturday 10:30 p.m.....
Well little Ella has done so well today. She has had enough wet diapers that they have stopped reporting them to Andrea and Joe. All of her stats look very good and she seems to be fighting very hard. She is still critical, but is showing improvement. She is getting another blood transfusion in the morning and a new platelet transfusion. She has used up all of the platelets from he first transfusion fighting off this nasty disease, and it is perfectly normal. They say she is moving in the right direction and we pray she will be out of critical soon. She has had NO seizures for 29 hours now and counting. She has been almost 48 hours with a negative blood culture and that is remarkable. Her doctor from Children's will be coming tomorrow to do another spinal tap to check her spinal fluids for the disease. Andrea and Joe are in good spirits although you can only imagine how hard it is to see your infant go through this. They keep each other going and it is remarkable to watch.
Well little Ella has done so well today. She has had enough wet diapers that they have stopped reporting them to Andrea and Joe. All of her stats look very good and she seems to be fighting very hard. She is still critical, but is showing improvement. She is getting another blood transfusion in the morning and a new platelet transfusion. She has used up all of the platelets from he first transfusion fighting off this nasty disease, and it is perfectly normal. They say she is moving in the right direction and we pray she will be out of critical soon. She has had NO seizures for 29 hours now and counting. She has been almost 48 hours with a negative blood culture and that is remarkable. Her doctor from Children's will be coming tomorrow to do another spinal tap to check her spinal fluids for the disease. Andrea and Joe are in good spirits although you can only imagine how hard it is to see your infant go through this. They keep each other going and it is remarkable to watch.
May 12, 2009...our little Ella today:
Are you kidding me?? After reading our post from 3 years ago today it is more evident that we have a miracle on our hands. Ella rode a horse today, participated in speech therapy, worked on grasp and release in occupational therapy and walked in PT today...she is amazing...and I'm SO thankful for busy days like today, because it means that she's getting better...every day.
